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PROBLEM SNAPSHOT
Over 20,000 Australians are living with lupus. Most suffer in silence
90% of sufferers are women
Aboriginal and Torres Strait Islander peoples are 2 – 4 times more likely to develop SLE than the general Australian population
Average diagnosis delay is roughly 1.5 – 3 years from symptom onset to official lupus diagnosis.
There is no cure
About Us
Lupus Foundation of Australasia (LFA) is the national peak body representing the lupus community in Australia and New Zealand.
We have a vision to live in a world where lupus has a cure, and everyone has access to it.
Our mission:
01.
Encourage the search for lupus cure through research
02.
Detect and manage lupus early and prevent further events
03.
Raise public and government awareness of lupus disorders, their prevalence and impact.
Goal 1
Encourage the search for lupus cure through research
01.
Establish partnerships with universities, research institutes and health organisations, pharmaceuticals to advance lupus research and improve patient care.
02.
Form consumer engagement groups to participate in research projects.
03.
Fundraising through merchandise selling, virtual webinars, events.
Goal 2
Detect and manage lupus early and prevent further events
01.
Empowering individuals with lupus through educational resources and support for effective self-management.
02.
Develop equitable risk prediction and management methods – develop program and policies that embed targeted screening for lupus within the health system.
03.
Ensure access to comprehensive and culturally responsive services and support for people living with lupus
Goal 3
Raise public and government awareness of lupus disorders, their prevalence and impact.
01.
Advocate for policies to address social, environmental and cultural determinants of lupus
02.
Increase awareness of environmental impacts on lupus and take action to address these
03.
Build partnerships with government and industry to enhance urban planning and promote active and sustainable design.
CONTACT
The website is here to provide you with the resources you need.
We welcome feedback on our site, suggestions for links and further topics and any inquiries about our work or improving the foundation.
We also invite other organisations to contact us about working together to reach our shared goals.