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Managing Lupus

Practical information to help you manage symptoms, recognise changes and look after your health.

WHAT DO YOU NEED HELP WITH?

FATIGUE

Practical ways to manage energy, rest and daily activities.

ACTIVE PARTNER

Be proactive and manage your symptoms with our toolkit.

SKIN & SUN

Protect yourself from UV exposure and photosensitivity.

FLARES

Understanding lupus flares and ways to manage symptoms when they occur.

PAIN & JOINTS

Helpful ways to manage and ease joint pain when living with lupus.

HEALTHY LIFESTYLE

Lifestyle choices to help manage lupus and support your overall wellbeing.

YOUR LUPUS TOOLKIT

Small actions can make managing lupus easier.

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Living Well With Lupus Checklist

A practical checklist for everyday lupus management.

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Symptom Tracker

Keep track of symptoms and changes between appointments.

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Appointment Planner

Note symptoms, medicines and questions before your appointment.

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My Flare Plan

Record your usual flare signs and what to if symptoms worsen.

MANAGING SYMPTOMS

FATIGUE

Fatigue is one of the most common symptoms experienced by people with lupus.

Strategies that may help include:

√ Planning activities and prioritising what matters most.

√ Taking regular breaks before becoming exhausted.

√ Maintaining gentle physical activity when possible.

√ Establishing healthy sleep routines.

√ Asking for support when needed.

Learning to balance activity and rest is an important part of living well with lupus.

PAIN & JOINTS

There are several strategies that may help manage lupus-related joint symptoms

SKIN & SUN

For many people with lupus, ultraviolet (UV) exposure can trigger symptoms or worsen disease activity.

Sun protection is an important part of lupus management:

Apply broad-spectrum sunscreen every day.
Wear protective clothing, hats, and sunglasses.
Seek shade during high UV periods.
Be mindful that UV exposure can occur even on cloudy days.

Your healthcare team can provide advice specific to your skin symptoms and lupus type.

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COULD THIS BE A LUPUS FLARE?

Changes worth paying attention to may include:

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Something has changed?

Contact your healthcare team if you notice new, persistent or worsening symptoms.

Track my symptoms

MANAGE YOUR HEALTHCARE

TAKE AN ACTIVE ROLE IN YOUR CARE

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Download appointment checklist

HEALTHY LIFESTYLE CHOICES

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WHEN SOMETHING DOES NOT FEEL RIGHT

Paying attention to changes early can help prevent problems and get the right care sooner.

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This information is general and not a substitute for professional medical advice. Always follow the advice of your healthcare team.

SUPPORT & NEXT STEPS

You don't have to manage lupus alone. We're here to support you

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We are here for you

If you can't find what you're looking for, please contact us. Our team is here to help.

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